Transfusion-dependent beta-thalassemia major Caregiver burden Family resilience Beta-Thalassemia Caregivers Caregiver Burden Resilience, Psychological Psychoeducation Nursing Care
Conditions
Interventions
A four week nurse led psychoeducational intervention based on Walsh Family Resilience Framework was provided to parents of children with transfusion dependent beta thalassemia major. The intervention
Experimental Behavioral,No Intervention No treatment
Nurse-led Walsh Family Resilience-Based Psychoeducational Intervention,Routine Institutional Care (Control Group)
Sponsors
Universitas Bhakti Husada Indonesia
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: 1. Parent or primary caregiver of a child with confirmed transfusion-dependent beta-thalassemia major. 2. The child receives regular blood transfusions. 3. Aged 18 years or older. 4. Able to communicate in Indonesian. 5. Willing to provide written informed consent.
Exclusion criteria
Exclusion criteria: 1. Caregiver of a child older than 18 years. 2. Caregiver of a child with major congenital anomalies. 3. Caregiver of a child with neurological disorders. 4. Unable to participate in all intervention sessions or follow-up assessments.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Caregiver burden Baseline before intervention, immediately after intervention, and 3 months after intervention Measured using the culturally adapted Caregiver Strain Index (CSI). | — |
Secondary
| Measure | Time frame |
|---|---|
| No secondary outcome Not applicable Not applicable | — |
Countries
Indonesia
Contacts
Public ContactNanang Saprudin
Universitas Bhakti Husada Indonesia
Outcome results
None listed