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Siriraj ADPKD registry

The registry of Autosomal Dominant Polycystic Kidney Disease in Siriraj hospital

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
TCTR
Registry ID
TCTR20250121001
Enrollment
630
Registered
2025-01-21
Start date
2023-05-01
Completion date
Unknown
Last updated
2026-08-03

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Patients with the diagnosis of ADPKD Patients with the diagnosis of ADPKD by Ravine Unified Criteria for Ultrasonographic Diagnosis of ADPKD

Interventions

Patients with the diagnosis of ADPKD by Ravine Unified Criteria for Ultrasonographic Diagnosis of ADPKD
Diagnostic
ADPKD

Sponsors

Siriraj Research Development Fund
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: Patients with the diagnosis of ADPKD

Exclusion criteria

Exclusion criteria: Patients with other causes of cystic kidney disease

Design outcomes

Primary

MeasureTime frame
Difference of ESRD incidence between ADPKD patients with PKD1 mutation and PKD2 mutation Time of RRT initiation Mutation analysis done by Sanger sequencing analysis, Multiplex ligationdependent probe amplification and other appropriate method may be included if needed.

Secondary

MeasureTime frame
Difference of the rate of GFR decline between ADPKD patients with PKD1 mutation and PKD2 mutation Time of last fullow up calculation by CKD-EPI 2021 equation, using serum creatinine,Difference of total kidney volume between ADPKD patients with PKD1 mutation and PKD2 mutation Baseline calculated using the elipsoid equation by radiologist from CT or MRI kidney,Difference of renal and extra-renal manifestation between ADPKD patients with PKD1 mutation and PKD2 mutation During follow up review of medical record,Association of type of genetic mutation and clinical outcomes During follow up Mutation analysis done by Sanger sequencing analysis, Multiplex ligationdependent probe amplification and other appropriate method may be included if needed.

Countries

Thailand

Contacts

Public ContactKornchanok Vareesangthip

Faculty of Medicine Siriraj hospital, Mahidol University

kornchanok.ploy@gmail.com0897644513

Outcome results

None listed

Source: TCTR (via WHO ICTRP) · Data processed: Aug 10, 2026