Hematopoietic cell transplantation (HSCT) Diseases of the blood and blood-forming organs and certain disorders involving the immune mechanism Preparednes Uncertainty Distress Family Caregiver Hematopoietic stem-cell transplantation Bone Marrow Transplantation
Conditions
Interventions
Intervention group: The study intervention (the implementation of a family based discharge program), will begin immediately after the patient is admitted to the HSCT ward and will continue until two w
s hospitalization until two weeks after the patient'
s discharge from the hospital. The discharge program will be done separately for the caregivers of each patient. 2) At the beginning of the patient'
s hospitalization and at the first encounter with family caregivers, their needs for care for HSCT patients are assessed through a survey. For this purpose, forms are provided to families and they are
Post discharge care includes how to clean the home, emergencies that require contact with the medical team, diet, visitation restrictions, and HSCT clinics work
Experimental Other,Experimental Other
Intervention group: discharge plan recievers,Control group: Standard care recievers
Sponsors
Dr Mohamad Ali Sahraeiyan
Eligibility
Sex/Gender
All
Age
18 Years to 60 Years
Inclusion criteria
Inclusion criteria: family member age over 18 years old Caring for the patient at home Ability to speak, read and write in Persian Having a smartphone and access to the Internet and social media Age range 18 to 60 years for Patients undergoing HSCT Patient undergoing HSCT for any reason (leukemia, lymphoma, immune problems, etc.) Patient undergoing HSCT (allogeneic or autologous) Hospitalization of patients under HSCT in adult wards Having at least two family members involved in patient care at home
Exclusion criteria
Exclusion criteria: Having a distinct mental illness of a family caregiver Recent critical events such as the loss of loved ones and divorce Caring for another person in the family due to an underlying illness Addiction of a family member based on self-declaration Withdrawal of Participants from the study Long-term hospitalization of patients (more than one month) Transplant rejection Death of the patient
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Family caregivers' preparedness Before the intervention and after the intervention The Preparedness for Caregiving Scale (CPS) , Uncertainty Before the intervention and after the intervention Uncertainty in Illness Scale-Family Member form (PPUS-FM) | — |
Secondary
| Measure | Time frame |
|---|---|
| Distress Score Before the intervention and after the intervention Distress Thermometer (DT) | — |
Countries
Iran
Contacts
Public ContactMohammad Zolfaghari
School of Nursing Midwifery ,Tehran University of Medical Sciences
Outcome results
None listed