Cerebral palsy
Conditions
Interventions
Two subjects were submitted to postural adjustment using the digitalised seat and backrest system. After delivery of these resources, a six-week home intervention program was implemented. This program
improve the ergonomic conditions to dress the adolescent after bathing
positioning of the adolescent in the wheelchair. In view of this, the actions developed were: transfer training for wheelchair
modification of the place of the adolescent's clothing exchange
provision of information and training regarding the use of wheelchair accessories. For caregiver B, the objectives were: to improve the positioning of the adolescent in the wheelchair from the use of
to stimulate the adolescent's performance during the feeding activity in the wheelchair
facilitate communication skills of the adolescent with the caregiver
positioning of the adolescent in the wheelchair. The actions developed with caregiver B were: transfer training
preparation of an alternative communication board and functional training for i
Other
E07.796.980
Sponsors
Universidade Federal de São Carlos
Universidade Federal de São Carlos
Eligibility
Age
30 Years to 80 Years
Inclusion criteria
Inclusion criteria: Caregivers who accompany adolescents with clinical diagnosis of cerebral palsy for at least one year and who do not receive remuneration for care; adolescents who are aged between 10 and 19 years and who use wheelchairs in a home environment for at least one year.
Exclusion criteria
Exclusion criteria: Adolescents with cerebral palsy who have already undergone postural adjustments through the use of the digitized system; who are able to use the wheelchair independently, requiring no direct assistance from a caregiver.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The home intervention program based on the model focused on the family established for both cases showed potential for improving the perception of quality of life, satisfaction with the technology (wheelchair) and occupations of informal caregivers of adolescents with cerebral palsy.The average quality of life of the caregivers obtained through the WHOQOL-Bref increased from 83 points to 88 points. The average for satisfaction with the technology obtained through QUEST was 42 points to 46.5. From the COPM, it was observed an improvement in the perception of occupational performance, going from an average of 15 points to 17.5, as well as satisfaction with occupations, from 14.5 to 15 points. | — |
Secondary
| Measure | Time frame |
|---|---|
| In the fallow-up it was possible to observe that the scores related to the occupations of the caregivers (perception of performance and satisfaction) increased. The averages of the quality of life and wheelchair satisfaction scores presented a decrease in this last phase. According to the COPM, the average perception of performance went from 17.5 points to 21 points; the average satisfaction with occupations increased from 15 points to 18.5. For QUEST, satisfaction with technology decreased from 46.5 to 45.5. In the data obtained from the WHOQOL-Bref, the scores went from 88 points to 77.5. | — |
Countries
Brazil
Contacts
Public ContactJacqueline Costa
Universidade Federal de São Carlos
Outcome results
None listed