Skin and Connective Tissue Diseases Buruli Ulcer, Leprosy, Lymphatic Filariasis
Conditions
Interventions
Participatory Cocreation of a Skin Selfcare QA Dataset
Sponsors
African Research Network for Neglected Tropical Diseases ARNTD
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: ? Individuals aged 6 years and older (minors accompanied by consenting parent/guardian) ? Has been confirmed diagnosed with, or possessing verifiable lived experience of either BU, Leprosy, or LF and has been notified to their respective state program ? Resides in southern Nigeria, especially within the study locations, Anambra, Akwa-Ibom or Enugu states ? Depending on the stage of disease, presence of corresponding physical evidence of skin manifestation of the NTD, and/or requires self-care or wound management for their condition ? Able and willing to provide informed consent to participate in the study ? Able and willing to share their personal lived experience of skin-NTDs.
Exclusion criteria
Exclusion criteria: Affected persons living with skin-NTDs will be excluded if the individual is hospitalized for experiencing an acute, life-threatening medical emergency or systemic infection that requires immediate clinical attention.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Change in self-esteem and internalized stigma scores of the affected persons involved | — |
Secondary
| Measure | Time frame |
|---|---|
| Change in digital health literacy of the affected persons involved | — |
Countries
Nigeria
Contacts
Public ContactDaniel Egbule
CEO RedAid Nigeria
Outcome results
None listed