Digestive System
Conditions
Interventions
Dietary Practices Survey
Sponsors
Abdelrahman Mostafa Ahmed Hassan
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. Patients aged 13 years and older with a confirmed diagnosis of Wilson’s Disease based on clinical, biochemical, radiological, slit-lap examination and genetic criteria, who are on regular follow up at Assiut Liver Center, and the Specialized Wilson’s Disease Clinic. 2. Patients who are clinically stable and able to participate in interviews or complete surveys.
Exclusion criteria
Exclusion criteria: 1. Patients experiencing acute hepatic or neurological decompensation at the time of recruitment. 2. Individuals with cognitive impairments that preclude informed consent or meaningful participation. 3. Patients or caregivers who refuse to provide consent.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Dietary Adherence Index: A composite score based on the Dietary Practices Survey, reflecting the level of adherence to copper-restricted diets and the affordability challenges faced. | — |
Secondary
| Measure | Time frame |
|---|---|
| Geographic Access Metrics: Quantitative data on distance to care (km), travel time (hours), and transportation cost (EGP) per visit, visualized on a geospatial map | — |
Countries
Egypt
Contacts
Public ContactAbdelrahman Mostafa Ahmed Hassan
residant doctor at Tropical Medicine and Gastroenterology Assiut University
Outcome results
None listed