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Akwenda Cerebral Palsy Intervention Program

Community Based Intervention Programme for Children with Cerebral Palsy in a Low-Resource Setting in Sub-Saharan Africa

Status
Recruiting
Phases
Unknown
Study type
Interventional
Source
PACTR
Registry ID
PACTR202011738099314
Enrollment
88
Registered
2020-11-20
Start date
2021-02-01
Completion date
Unknown
Last updated
2026-09-14

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Paediatrics

Interventions

Akwenda Cerebral Palsy Intervention Program
No Intervention

Sponsors

Hans Forssberg Karolinska Institutet
Lead Sponsor
Angelina Kakooza Makerere University
Collaborator

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: Children and youth with confirmed CP who now are 7-22 year old They were identified in a screening survey carried out at IM-HDSS in 2015 when they were 2-17 year. In addition we will recruit 20 younger children who now are 2-7 years with CP. This will be done by community development officer. These children are living in the IM-HDSS but were not included in the initial prevalence study since they were less than 2 years. The CP diagnosis is determined by using the SCPE flow chart.

Exclusion criteria

Exclusion criteria: Children who are already receiving similar treatment services like that to be offered in the Akwenda programme. Children from the original cohort who are deceased or have moved to new locations away from the study area.

Design outcomes

Primary

MeasureTime frame
Child outcome measures - Change in gross motor function measures. Tool - Gross Motor Function Measure 66;Child outcome measures - A parent-reported measure of the child’s independence in self-care, mobility and social function. Tool - Uganda version of Pediatric Evaluation of Disability Inventory.;Child outcome measure - Participation, attendance and involvement. Tool - Picture My Participation;Child outcome measure- Use of Technical Assistive Devices. Tool - Technical Assistive Device questionnaire.;Caregiver related outcomes - Attitude, knowledge and skills. Tool - Caregiver knowledge and understanding questionnaire. ;Caregiver related outcome - Caregiver skill and behaviours. Tool - Caregiver video analysis assessment.;Caregiver related outcome - Quality of life. Tool - 36 item Ped—

Secondary

MeasureTime frame
Child outcome measures - The level of attainment. Tool - Goal settings; achievement of goals.—

Countries

Uganda

Contacts

Public ContactElizabeth Asige

PhD Student Makerere University

asigelizabeth@yahoo.com+256772394159

Outcome results

None listed

Source: PACTR (via WHO ICTRP) · Data processed: Sep 19, 2026