Schools and Young People with Sickle Cell Disease (SCD) in Nigeria

Status

Recruiting

Phases

Unknown

Study type

Interventional

Source

PACTR

Registry ID

PACTR201609001789310

Enrollment

400

Registered

2016-09-20

Start date

2016-09-30

Completion date

Unknown

Last updated

2026-09-14

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Haematological Disorders Sickle Cell Disease

Interventions

School Guide on Sickle Cell Policy

Standard School Health Education

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: 1. Ages: 5-18 living with sickle cell disease (sickle cell anaemia; haemoglobin SC disease, sickle beta-thalassaemia or other forms of sickle cell disease, but not sickle cell trait [haemoglobin AS]) 2. Attending the outpatient sickle cell clinics at Lagos State University College of Medicine and/or the Lagos sickle cell support clubs, 3. Assent (with parental consent), or (aged 16+) who consent, to take part.

Exclusion criteria

Exclusion criteria: Those on inpatient admissions Those who are too sick to participate in the study Those who do not consent or assent to the study

Design outcomes

Primary

Measure	Time frame
composite score out of ten based on the ten test items (some score 1 point for a yes, some score 1 point for a no depending upon whether the item in question represents a support to good health or a threat to good health)	—

Secondary

Measure	Time frame
Number of days off school	—

Countries

Nigeria

Contacts

Public ContactBolanle Ola

Senior Lecturer/LASUCOM

wobola@yahoo.com+2347033429007

Outcome results

None listed

Source: PACTR (via WHO ICTRP) · Data processed: Sep 19, 2026