Palliative care, Terminal care End-of-Life care
Conditions
Interventions
Over a period of six months, the interactions of patients with their healthcare providers and relatives will be systematically documented and analyzed. These interactions may include outpatient consul
Sponsors
Radboud Universitair Medisch Centrum
Eligibility
Age
18 Years to 99 Years
Inclusion criteria
Inclusion criteria: Adults who are seriously ill and therefore receive palliative care. Seriously ill patients are defined as people who will not recover and who will experience functional decline over time due to illness or old age. Categorizing oneself within a certain ‘identity’ that may influence how one is treated during care, but may also affect their experience and the quality of care. Examples of ‘identities’ include ethnicity, religion, socioeconomic factors (poverty, low literacy, homelessness), (trans)gender, and sexual orientation
Exclusion criteria
Exclusion criteria: Patients younger than 18 years.Patients who are considered to have no or reduced decision-making capacity (for example, due to advanced dementia and/or mental illness).Patients with very low resilience/frailty that makes it impossible to conduct an interview. This is determined in consultation between the healthcare providers and the researchers before anyone is approached at all.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| What challenges do seriously ill patients (with specific identities), their relatives, and healthcare providers face within their care trajectory? | — |
Secondary
| Measure | Time frame |
|---|---|
| How is care experienced by the patient? How do different “identities” influence their interactions with the healthcare system? How do these categories come together in their daily experiences? How are these interactions influenced by the current healthcare system? | — |
Countries
Netherlands
Contacts
Public ContactE.L. Pel
Radboud Universitair Medisch Centrum
Outcome results
None listed