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Individual and familial AID in NT1

Individual and familial auto-immune disorders in narcolepsy type 1 - Individual and familail auto-immune disorders in narcolepsy type 1

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
NL-OMON
Registry ID
NL-OMON58160
Enrollment
480
Registered
2025-10-20
Start date
2025-11-25
Completion date
Unknown
Last updated
2025-12-01

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

narcolepsy type 1, narcolepsy type 2, idiopathic hypersomnia sleep disorders with excessive daytime sleepiness

Interventions

Online questionnaire

Sponsors

SEIN - Stichting epilepsie instellingen nederland
Lead Sponsor

Eligibility

Age
16 Years to 99 Years

Inclusion criteria

Inclusion criteria: At least 16 years old, legally competent.For the NT1 group: a (primary) diagnosis of narcolepsy type 1 according to the ICSD-3 TR criteria.For the control group with other central hypersomnolence: a diagnosis of narcolepsy type 2 or idiopathic hypersomnia according to the ICSD-3 TR criteria.For the control group with another type of sleep–wake disorder: a diagnosis of insomnia or sleep apnea according to the ICSD-3 TR criteria.Currently or previously treated at the SEIN sleep–wake center between January 2015 and December 2025.Has given permission to SEIN to be contacted for scientific research.Available email address.

Exclusion criteria

Exclusion criteria: N/A

Design outcomes

Primary

MeasureTime frame
Is an (additional) immune disease more common in people with NT1 than in people with another type of sleep disorder (insomnia/sleep apnea)?

Secondary

MeasureTime frame
Is an (additional) immune disease more common in the biological parents of people with NT1 than in those of people with another type of sleep disorder (insomnia/sleep apnea)?Is an (additional) immune disease more common in people with NT1 (or their biological parents) than in people with another central hypersomnolence disorder (NT2/IH)?Is an (additional) immune disease more common in people with NT1 (or their biological parents) than would be expected based on data from the general population?

Countries

Netherlands

Contacts

Public ContactGJ Lammers

SEIN - stichting epilepsie instellingen nederland

gjlammers@sein.nl023 - 558 8900

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)