Development of a Child-Friendly Version of the Michigan Retinal Degeneration Questionnaire (MRDQ)

Development of a Child-Friendly Version of the Michigan Retinal Degeneration Questionnaire (MRDQ) - Development of a Child-Friendly Version of the Michigan Retinal Degeneration Questionnaire (MRDQ)

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON58151

Enrollment

Registered

2025-11-19

Start date

2026-01-11

Completion date

Unknown

Last updated

2025-11-24

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Retinal Dystrophy Inherited eye disease

Interventions

Michigan retinal degeneration questionnaire (MRDQ)

Eligibility

Age

2 Years to 64 Years

Inclusion criteria

Inclusion criteria: • Children aged 6–11 years with clinically confirmed RD. • Parents/caregivers of these children. • Willingness to participate in a focus group (approximately 60 minutes).

Exclusion criteria

Exclusion criteria: • Insufficient proficiency in Dutch to understand or discuss the questions. • Severe additional cognitive impairments that prevent participation in a group discussion.

Design outcomes

Primary

Measure	Time frame
Development of a child-friendly draft version of the MRDQ.	—

Secondary

Measure	Time frame
-	—

Countries

Netherlands

Contacts

Public ContactS.B.A.E. Tulp

Amsterdam UMC

trialoog@amsterdamumc.nl020 566 9111

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)