Motor Neuron Disease
Conditions
Interventions
The results of both surveys (among healthcare professionals and patients/relatives) are used to develop a care pathway for people with ALS (and their loved ones).
Sponsors
European Reference Network EURO-NMD
Eligibility
Age
18 Years to 99 Years
Inclusion criteria
Inclusion criteria: People with a diagnosis of ALS
Exclusion criteria
Exclusion criteria: Low literacy
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The outcome measure is the result of experienced care, obstacles and needs and preferences. | — |
Secondary
| Measure | Time frame |
|---|---|
| None | — |
Countries
Austria, Belgium, Denmark, France, Germany, Ireland, Italy, Netherlands, Portugal, Romania, Spain, Sweden, Switzerland
Contacts
Public ContactM de Visser
Amsterdam UMC
Outcome results
None listed