genetic, genomic variation
Conditions
Interventions
None listed
Sponsors
Erasmus MC, Universitair Medisch Centrum Rotterdam
Eligibility
Age
18 Years to 64 Years
Inclusion criteria
Inclusion criteria: The aim of our study is to engage a wide variety of stakeholders; people with different backgrounds, of different ages, having lived different lives. This made us hesitant in choosing restricting inclusion criteria. For the first group, inclusion criteria include being (genetically) burdened with a condition. This includes people or parents of children that have to undergo regular check-ups at a medical specialist in a hospital. For the second group, we want to include the general public, not burdened with certain chronic diseases or illness, defined as not having had regular check-ups with a medical specialist in a hospital. In the third group healthcare professionals will be included. These include medical specialists (in training) in the field of clinical genetics and medical specialists (in training) in aligned fields (i.e. cardiologists, oncologists, pediatricians). Physicians assistants, midwifes and general practitioners will be included as well.
Exclusion criteria
Exclusion criteria: An exclusion criterion in the first two groups is being a healthcare professional themselves.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Views on the scope and use of preventive genomic screening of different stakeholders. | — |
Countries
Netherlands
Contacts
Public ContactV. Schoot
Erasmus MC, Universitair Medisch Centrum Rotterdam
Outcome results
None listed