PARC

Paraganglioma Registry of Clinical data - Paraganglioma Registry of Clinical data

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON57940

Enrollment

500

Registered

2025-08-07

Start date

2026-05-10

Completion date

Unknown

Last updated

2026-08-10

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Pheochromocytoma and Paraganglioma

Interventions

Structured collection of health care-related data

Eligibility

Age

16 Years to 99 Years

Inclusion criteria

Inclusion criteria: diagnosis of PPGLcarrier of germline mutation in one of the PPGL susceptbility genesage 16 yrs or older

Exclusion criteria

Exclusion criteria: age younger than 16 yrs

Design outcomes

Primary

Measure	Time frame
The primary outcome will depend on the specific research question of a future research project	—

Secondary

Measure	Time frame
The secondary outcome will depend on the specific research question of a future research project	—

Countries

Netherlands

Contacts

Public ContactMN Kerstens

Universitair Medisch Centrum Groningen

m.n.kerstens@umcg.nl+31-50-3613518

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP) · Data processed: Aug 25, 2026