esophagusatresia and oesophageal atresia
Conditions
Interventions
none
Sponsors
Erasmus MC, Universitair Medisch Centrum Rotterdam
Eligibility
Age
16 Years to 64 Years
Inclusion criteria
Inclusion criteria: All children born between 01-01-2015 and 31-12-2024 diagnosed with Esophageal Atresia (EA), along with their parents and under treatment in one of the expertise centra; Erasmus MC, UMC Utrecht en Amsterdam UMC will be included in the study following the acquisition of informed consent
Exclusion criteria
Exclusion criteria: Children before the first discharge
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| - Incidence of ALTE in children diagnosed with an esophageal atresia within a home setting.** - Psychological impact on parents of ALTE and/or of having to perform BLS on their child with esophageal atresia | — |
Secondary
| Measure | Time frame |
|---|---|
| - Incidence of calling the emergency line (112) in response to ALTEs in children with EA** - Incidence of performing paediatric basic life support (PBLS) by parents - Intervention(s) performed by parents during an ALTE - Pathogenesis of ALTEs in children diagnosed with EA - (Surgical) management after an ALTE in children with an EA* - Aftercare and follow-up provided to parents after experiencing an ALTE with their child | — |
Countries
Netherlands
Contacts
Public ContactA Berthelot
Erasmus MC, Universitair Medisch Centrum Rotterdam
Outcome results
None listed