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Analysis of the rehabilition program for ABI (Dutch: NAH)

Analysis of the rehabilition program for ABI (Dutch: NAH) - ARENAH

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
NL-OMON
Registry ID
NL-OMON56588
Enrollment
50
Registered
2024-02-06
Start date
2024-03-01
Completion date
Unknown
Last updated
2024-12-02

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Visuele klachten n.a.v. Niet-aangeboren hersenaandoeningen Visual impairment through Acquired Brain Injury (ABI)

Interventions

None listed

Sponsors

Koninklijke Visio
Lead Sponsor

Eligibility

Age
18 Years to 99 Years

Inclusion criteria

Inclusion criteria: - Older than 18 years - Good understanding of the Dutch or English language - Clients of Royal Visio with visual impairment (through acquired brain injury)

Exclusion criteria

Exclusion criteria: - Clients who do not have any form of acquired brain injury. - Clients with complex psychiatric complaints - Clients with extremely low strain capacity. An indication for this is them not being able to complete a 60 min interview/intake on the telephone. - Limited life expectancy, for example those with terminal sickness or palliative care. - Severe cognitive impairment: I.e. incapable to answer for oneself (without help); hetero anamnesis; incapacitated; severe anosognosia. - Severe aphasia - Psychiatric disorders

Design outcomes

Primary

MeasureTime frame
Primary parameters will include variations in lead time. Lead time is defined as the duration between the initial intake and the onset of the rehabilitation trajectory. The transition from the research to the rehabilitation phase can be readily identified through the first and second multidisciplinary meetings (MD1 and MD2). In the first multidisciplinary meeting (MD1), the framework and assessments for the research trajectory are established in order to address the rehabilitation needs of the client. Typically scheduled one week after the intake, MD1 marks the initiation of the research trajectory. The second multidisciplinary meeting (MD2) takes place upon the completion of the research trajectory. During this meeting, the training sessions are precisely defined in terms of their nature and quantity, based on the rehabilitation needs and insights gathered from the research trajectory. MD2 therefore signifies the commencement of the rehabilitation trajectory.

Secondary

MeasureTime frame
Questionnaires are administered to clients (before and after the rehabilitation trajectory), and the answers will be compared. Depending on the rehabilitation needs, one or more questionnaires are administered in one of the following categories: - Communication - Orientation and Mobilization - ICT - Household - Light and discomfort glare - Psychosocial - Managing of energy balance - Leisure activity - Self-care. Furthermore, the following parameters are also taken into account: customer satisfaction, waiting list time, treatment outcomes, understanding of condition and limitation, and quality of life.

Countries

Netherlands

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)