Dementia
Conditions
Interventions
Both interventions include multiple interactive training sessions, forms to 
document results of ACP, and prompting of persons with dementia and their 
family caregiver by providing a question prompt list on palliative care in 
dementia. The contents of the training and forms match the focus of the 
respective intervention.
Sponsors
Leids Universitair Medisch Centrum
Eligibility
Age
18 Years to 99 Years
Inclusion criteria
Inclusion criteria: Inclusion criteria for persons with dementia: • diagnosis of irreversible dementia established by a physician; • decisional capacity and the person can be interviewed (adequate memory, speech and language, and ability to make decisions); • living at home; • sufficient capacity of the Dutch language; • adequate vision and hearing (can be achieved by using corrective lenses or hearing aid); • the family caregiver is also willing to participate in the study. Inclusion criteria for family caregivers of persons with dementia: • at least 18 years old; • sufficient capacity of the Dutch language; • decisional capacity; • adequate vision and hearing (can be achieved by using corrective lenses or hearing aid); • the person with dementia is also willing to participate in the study. Inclusion criteria for participating GPs: • GPs who are willing to contact persons with dementia and their family caregivers from their practice in the Netherlands for study participation and who are willing to complete training and study requirements to conduct ACP conversations with persons with dementia and their family caregivers if randomized to an intervention group.
Exclusion criteria
Exclusion criteria: Exclusion criteria for persons with dementia: • currently affected by a severe psychiatric disorder (e.g., major depression, schizophrenia, substance abuse, PTSD) as diagnosed by a psychiatrist, psychologist, or physician; • a life expectancy of less than four weeks; • severe aphasia or another language disorder. Exclusion criteria for family caregivers of persons with dementia: • currently affected by a severe psychiatric disorder (e.g. major depression, schizophrenia, substance abuse, PTSD) as diagnosed by a psychiatrist, psychologist, or physician if known to the GP of the person with dementia; • a life expectancy of less than four weeks if known to the GP of the person with dementia; • severe aphasia or another language disorder if known to the GP of the person with dementia. Exclusion criteria for GPs: • GPs with no persons with dementia in their practice; • GPs who plan to resign within one year.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The primary outcome is wellbeing of persons with dementia measured by Quality of Life in Late-Stage Dementia scale (QUALID). | — |
Secondary
| Measure | Time frame |
|---|---|
| The secondary outcomes are decisional conflict, self-efficacy to interact with physicians, and family caregiver perception of physician-family caregiver communication. | — |
Countries
Netherlands
Outcome results
None listed