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National kidney cancer registry

National PROspective infrastructure for Renal Cell Carcinoma - PRO-RCC

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
NL-OMON
Registry ID
NL-OMON56090
Enrollment
10000
Registered
2021-09-21
Start date
2023-01-19
Completion date
Unknown
Last updated
2026-03-16

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

renal cell carcinoma kidney cancer

Interventions

N.v.t.

Sponsors

Stichting PRO-RCC
Lead Sponsor

Eligibility

Age
18 Years to 99 Years

Inclusion criteria

Inclusion criteria: • Histologically proven RCC or mRCC or high clinical suspicion • Age >= 18 years at time of inclusion • Written informed consent • Able to read and understand the patient information

Exclusion criteria

Exclusion criteria: None

Design outcomes

Primary

MeasureTime frame
This efficient and unique infrastructure for RCC research creates a facility, that will yield detailed insights in RCC disease aspects and treatment in the Netherlands and enable improved patient accrual in clinical trials. Ultimately, this will lead to an introduction of improved new treatment options in daily clinical practice. Furthermore, the collected data on HRQoL, symptoms and clinical management from diagnosis to death will result in robust *real-world* patient data. Data from patients who undergo registered and experimental therapies can be studied to answer relevant questions on relapse and progression to invasive or metastatic disease, and on optimal (sequencing of) treatment regimens and HRQoL as part of the decision making.

Secondary

MeasureTime frame
Nv.t.

Countries

Netherlands

Contacts

Public ContactA.D. Bins

Stichting PRO-RCC

stichting@pro-rcc.nl0619760384

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP) · Data processed: Mar 20, 2026