SCORE: Stroke Cohort Outcome REhabilitation

SCORE: Stroke Cohort Outcome REhabilitation - SCORE

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON54660

Enrollment

836

Registered

2014-02-17

Start date

2014-03-10

Completion date

Unknown

Last updated

2024-04-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

CVA cerebrovascular accident stroke

Interventions

None listed

Eligibility

Age

18 Years to 64 Years

Inclusion criteria

Inclusion criteria: -Time since stroke

Exclusion criteria

Exclusion criteria: - Severe psychiatric condition or premorbid dementia - Impossible to communicatie in the Dutch language - Drug or alcohol abuse

Design outcomes

Primary

Measure	Time frame
- Functioning (Barthel Index, USER, SIS), activities and participation (CIQ, USER-P, IPAQ, accelerometry) quality of life (SAQOL-39g, EQ-5D, SF12). - Patients* perspective: treatment goals and fulfilment of goals (COPM), satisfaction with stroke care (SASC-19), longer term unmet needs (LUNS), illness perceptions (IPQ-R), coping (COPE-easy), expectations of treatment (interviews), self management (PAM-13). Caregiver's perspective: satisfaction with care (C-SASC), health (RAND36) and caregiver*s strain (CSI). - Structure ('outline' of treatment) and process (i.e. types, frequency and content of therapies) of rehabilitation in various centers. - Costs: rehabilitation costs, health care usage, out of pocket costs, absenteeism-related costs. At the 100 months follow-up a new set of questionnaires will be used to assess long term health status (in particular complications, participation, lifestyle) and health care usage (in particular medication and walking aids).	—

Measure

Time frame

- Functioning (Barthel Index, USER, SIS), activities and participation (CIQ, USER-P, IPAQ, accelerometry) quality of life (SAQOL-39g, EQ-5D, SF12). - Patients* perspective: treatment goals and fulfilment of goals (COPM), satisfaction with stroke care (SASC-19), longer term unmet needs (LUNS), illness perceptions (IPQ-R), coping (COPE-easy), expectations of treatment (interviews), self management (PAM-13). Caregiver's perspective: satisfaction with care (C-SASC), health (RAND36) and caregiver*s strain (CSI). - Structure ('outline' of treatment) and process (i.e. types, frequency and content of therapies) of rehabilitation in various centers. - Costs: rehabilitation costs, health care usage, out of pocket costs, absenteeism-related costs. At the 100 months follow-up a new set of questionnaires will be used to assess long term health status (in particular complications, participation, lifestyle) and health care usage (in particular medication and walking aids).

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Countries

Netherlands

Outcome results