brothers and sisters of children with disabilities siblings
Conditions
Interventions
Sponsors
Eligibility
Inclusion criteria
Inclusion criteria: - Children aged 6 year and older but younger than 10 years (up to 9 years and 11 months) and one of their parents/caregivers. - Children that have a brother or sister with (strongly suspected) visual impairment and/or intellectual disability (0-18 years old), with possibly other comorbid disabilities, disorders or illnesses. - The brother or sister with a disability lives in the same house (at least part of the time) - Children living in the Netherlands or Flanders (Dutch speaking part of Belgium) - Children with normal intelligence and vision
Exclusion criteria
Exclusion criteria: - Brother or sister with VI and/or ID lives in a residential care facility on a full-time basis - One or both parents have a disability or impairment - Not speaking the Dutch language - No written consent from the participant and/or their legal representative - Another sibling in the household is already included in the study
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The effectiveness of the serious game *Broodles* is determined by measuring quality of life and sibling adjustment to and perceptions of the disability of the brother or sister. Changes within the two groups, the experimental group and the control group, will be compared. | — |
Secondary
| Measure | Time frame |
|---|---|
| Additionally the effect of the serious game on the following outcome measures will be investigated: - Sibling self-esteem - Sibling experienced social support - Sibling relationship - Sibling coping skills - Parent-child relationship - Parenting self-efficacy Finally it will be investigated how the parents and siblings experience the effectiveness, desirability and applicability of the intervention. | — |
Countries
Netherlands