Navigating uncertainty in gender incongruence and differences in sex development (DSD)/intersex conditions

Navigating uncertainty in gender incongruence and differences in sex development (DSD)/intersex conditions - UNITE

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON53833

Enrollment

105

Registered

2022-07-27

Start date

2022-06-17

Completion date

Unknown

Last updated

2024-04-09

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

genderincongruentie differences in sex development/intersex conditions gender incongruence/transgender

Interventions

None listed

Eligibility

Age

No minimum to 64 Years

Inclusion criteria

Inclusion criteria: This study consists of three substudies: 1) an interview study, 2) an observation study on clinical consultations, and 3) an observation study on multidisciplinary meetings (MDMs). Below, we provide the inclusion criteria for each study. 1. Interview study: This study concerns four groups: 1) healthcare professionals, 2) children/adolescents with gender incongruence or a DSD/intersex condition, 3) their parents, and 4) (young) adults with a DSD/intersex condition. Below, we provide the inclusion criteria for the interview study for each group: 1) Healthcare professionals working at the Expertise Center Sex & Gender (Radboudumc) or Amsterdam Expertise Center for Atypical sex and gender development (Amsterdam UMC, VUmc & AMC) 2) Children/adolescents with gender incongruence or a DSD/intersex condition between 8 and 18 years old who receive care at one of the two expertise centers (mentioned above) 3) Parents of children/adolescents with gender incongruence or a DSD/intersex condition who receive care at one of the two expertise centers (mentioned above) 4) Adults with a DSD/intersex condition between 18 and 50 years old who received care for this earlier in their lives or still receive medical care 2. Observation study on consultations: This study concerns largely the same groups as the interview study, except for the group of adults with a DSD/intersex condition. Moreover, the minimum age of 8 for children participating in the interview study is not applicable for the observation study, since children younger than 8 may also be part of the video-recorded consultations. Below we provide the inclusion criteria for the observation study for each group: 1) Healthcare professionals working at the Expertise Center Sex & Gender (Radboudumc) or Amsterdam Expertise Center for Atypical sex and gender development (Amsterdam UMC, VUmc & AMC) 2) Children/adolescents with gender incongruence or a DSD/intersex condition between 0 and 18 years old, who receive care at one of the two expertise centers (mentioned above) 3) Parents of children/adolescents with gender incongruence or a DSD/intersex condition who receive care at one of the two expertise centers (mentioned above) 3. Observation study on MDMs: This study concerns the same group of healthcare professionals as those approached for the studies described above: Healthcare professionals working at the Expertise Center Sex & Gender (Radboudumc) or Amsterdam Expertise Center for Atypical sex and gender development (Amsterdam UMC, VUmc & AMC)

Exclusion criteria

Exclusion criteria: -

Design outcomes

Primary

Measure	Time frame
Interview study: insight into the experiences and reflections of healthcare professionals, children/adolescents and their parents with regard to uncertainty in transgender and DSD/intersex care. Observation study consultations: insight into the ways in which different types of uncertainty manifest in clinical consultations, what the interactional consequences of those manifestations are, and whether/how these change in the course of a medical trajectory. Observation study MDMs: insight into the ways in which different types of uncertainty manifest in multidisciplinary meetings, and what the interactional consequences of those manifestations are.	—

Measure

Time frame

Interview study: insight into the experiences and reflections of healthcare professionals, children/adolescents and their parents with regard to uncertainty in transgender and DSD/intersex care. Observation study consultations: insight into the ways in which different types of uncertainty manifest in clinical consultations, what the interactional consequences of those manifestations are, and whether/how these change in the course of a medical trajectory. Observation study MDMs: insight into the ways in which different types of uncertainty manifest in multidisciplinary meetings, and what the interactional consequences of those manifestations are.

—

Secondary

Measure	Time frame
N/a.	—

Countries

Netherlands

Outcome results