hersengerelateerde aandoeningen brain related disorders
Conditions
Interventions
None listed
Sponsors
Erasmus MC, Universitair Medisch Centrum Rotterdam
Eligibility
Age
No minimum to 17 Years
Inclusion criteria
Inclusion criteria: Patients with disorders of brain, limbs and senses that are seen more than once at the outpatient clinic of the pediatric brain center, aged 0-18 years of age, able to return for long-term follow-up
Exclusion criteria
Exclusion criteria: Patients who are unable to comply with the test circuit at the discretion of the treating physician
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Main study parameters/endpoints: In the Child Brain Lab (CBL) we measure development of the participants on different relevant domains. These include psychological functions (intelligence, emotions, communication and behaviour), motor function, growth, senses and neurophysiology. Data will be analysed per disorder and cross-disorder. We aim at inviting participants for 5 repeated assessments between 0 and 18 years of age; in case a diagnosis is made at a later age this may be less, and in specific disorders subtest may be done more often. The design of the Self-Portrait and the effect on patient/family satisfaction, participation and shared decision making will be analysed | — |
Secondary
| Measure | Time frame |
|---|---|
| see primary | — |
Countries
Netherlands
Outcome results
None listed