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The views of adolescent Anorexia Nervosa patients and their parents on clinical decision making in compulsory nasogastric feeding: an exploratory qualitative interview study

The views of adolescent Anorexia Nervosa patients and their parents on clinical decision making in compulsory nasogastric feeding: an exploratory qualitative interview study - Views on compulsory nasogastric feeding

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
NL-OMON
Registry ID
NL-OMON51618
Enrollment
16
Registered
2022-05-30
Start date
2022-08-10
Completion date
Unknown
Last updated
2024-04-09

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Anorexia Nervosa Eating disorder

Interventions

None listed

Sponsors

Psychiatrie
Lead Sponsor

Eligibility

Age
12 Years to 64 Years

Inclusion criteria

Inclusion criteria: In order to be eligible to participate in this study, a subject must meet all of the following criteria: The patient had the diagnosis Anorexia Nervosa, was under 18 years of age during admission, compulsory NF with physical restraint were carried out during admission, and the patient must have had a minimum of one admission with compulsory NF to another health care facility other than the Amsterdam UMC. Parents of patients who meet the abovementioned criteria. Parents and patients do not necessarily need to all be related. Meaning that patients can be included, regardless if their parents want to participate and vice versa.

Exclusion criteria

Exclusion criteria: A potential subject who meets any of the following criteria will be excluded from participation in this study: The patient be excluded if they are younger than 12 years of age at the beginning of the study. This exclusion criterion are not applicable to the parents.

Design outcomes

Primary

MeasureTime frame
Explaining the decision making process surrounding compulsory NF in the view of patients and their parents: exploring their views on when compulsory NF is appropriate and when is it not, and what reasons may be to (dis)continue, as well as their experiences with long-term NF regarding benefits and harm. Also, exploring the views of patients and parents on their role and the involvement of the patient in the decision making process and exploring factors that facilitate a feeling of autonomy, potential pitfalls and subsequent ways for professionals to improve in this context. As well as exploring opinions on what may be suitable alternatives to clinical long-term compulsory NF.

Secondary

MeasureTime frame
Not applicable.

Countries

Netherlands

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)