Advanced cancer and relatives
Conditions
Interventions
The online Living with Cancer programme is a peer-led self-management programme
designed to support patients with advanced cancer and their relatives in their
confidence and skills to better manage
there is also one person available for technical support. Essential information
of the themes as discussed in the programme will be provided in short audio
clips with supported text, to allow partic
Sponsors
Erasmus MC, Universitair Medisch Centrum Rotterdam
Eligibility
Age
18 Years to 64 Years
Inclusion criteria
Inclusion criteria: Patients 1. Having advanced cancer (defined as having no curative treatment options available) 2. Access to a computer or laptop 3. Internet access Relatives 1. Relative of a patient with advanced cancer 2. Access to a computer or laptop 3. Internet access
Exclusion criteria
Exclusion criteria: Patients and relatives 1. Younger than 18 years of age 2. Unable to provide consent 3. Unable to read and speak the Dutch language
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| This is a mixed-methods study. Various quantitative and qualitative measures will be used to evaluate the effect of and experiences with the programme. Quantitative measures include: self-management behaviours (primary outcome), self-efficacy, quality of life, pain, fatigue, depression, anxiety, loneliness, and healthcare utilization. Qualitative measures include: experiences of participants regarding the content, value and working mechanism of the programme. | — |
Secondary
| Measure | Time frame |
|---|---|
| See Primary study parameter/outcome of the study. | — |
Countries
Netherlands
Outcome results
None listed