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Responsiveness of the PRPP (Perceive-Recall-Plan-Perform System of Task Analysis and Intervention) in children with mitochondrial disease

Responsiveness of the PRPP (Perceive-Recall-Plan-Perform System of Task Analysis and Intervention) in children with mitochondrial disease - PRPPchange-mito

Status
Active, not recruiting
Phases
Unknown
Study type
Interventional
Source
NL-OMON
Registry ID
NL-OMON51052
Enrollment
8
Registered
2021-06-29
Start date
2021-08-17
Completion date
Unknown
Last updated
2026-08-03

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

mitochondrial disease

Interventions

Home-based video coaching consisting of the PRPP-Intervention aimed at coaching parents how to guide their children in learning the activity

Sponsors

Radboud Universitair Medisch Centrum
Lead Sponsor

Eligibility

Age
2 Years to 17 Years

Inclusion criteria

Inclusion criteria: - Genetically confirmed mitochondrial disorder - Perform activities they would like to improve (learn to do better, faster, etc) - Age between 2 and 18 years

Exclusion criteria

Exclusion criteria: - Children with non-genetically confirmed mitochondrial disorder - Children who participate in the medication-trial

Design outcomes

Primary

MeasureTime frame
PRPP-Assessment

Secondary

MeasureTime frame
COPM GAS

Countries

Netherlands

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP) · Data processed: Aug 9, 2026