mitochondrial disease
Conditions
Interventions
Home-based video coaching consisting of the PRPP-Intervention aimed at coaching
parents how to guide their children in learning the activity
Sponsors
Radboud Universitair Medisch Centrum
Eligibility
Age
2 Years to 17 Years
Inclusion criteria
Inclusion criteria: - Genetically confirmed mitochondrial disorder - Perform activities they would like to improve (learn to do better, faster, etc) - Age between 2 and 18 years
Exclusion criteria
Exclusion criteria: - Children with non-genetically confirmed mitochondrial disorder - Children who participate in the medication-trial
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| PRPP-Assessment | — |
Secondary
| Measure | Time frame |
|---|---|
| COPM GAS | — |
Countries
Netherlands
Outcome results
None listed