CompAS The effect of a high intensive training in augmentative and alternative communication on communicative possibilities in patients with Angelman Syndrome

CompAS The effect of a high intensive training in augmentative and alternative communication on communicative possibilities in patients with Angelman Syndrome - CompAS

Status

Active, not recruiting

Phases

Unknown

Study type

Interventional

Source

NL-OMON

Registry ID

NL-OMON50653

Enrollment

Registered

2018-04-12

Start date

2018-03-05

Completion date

Unknown

Last updated

2024-04-23

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Angelman Syndrome intellectual disabillaty

Interventions

The study is conducted through the ABA-follow-up-design. All AS patients included in the intervention group will have a communication passport made. Following structured observation and consideratio

Eligibility

Age

2 Years to 99 Years

Inclusion criteria

Inclusion criteria: Angelman syndroom, 2 - 65 years of age

Exclusion criteria

Exclusion criteria: Uncontrolled epilepsy

Design outcomes

Primary

Measure	Time frame
- Raw score of the Communication matrix (patient, parents/caretakers);	—

Secondary

Measure	Time frame
- Number of independently used AAC symbols (patient); - Number of used communicative functions (parents/caretakers and patient); - Percentage of communicative turns with AAC (patient); - C-BiLLT (patient); - ABC (Aberrant Behavior Checklist), - Use of ModelER techniques (parent/caretakers) - VAS Satisfaction scale on communication and AAC (parents/caretakers)	—

Countries

Netherlands

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)