Clinical, biochemical and radiological characterization of Van Buchem disease A follow-up study

Clinical, biochemical and radiological characterization of Van Buchem disease A follow-up study - Characterization of Van Buchem disease: a follow up study

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON50569

Enrollment

Registered

2018-07-03

Start date

2019-06-15

Completion date

Unknown

Last updated

2024-04-15

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

hyperostosis corticalis Van Buchem disease

Interventions

None listed

Eligibility

Age

18 Years to 99 Years

Inclusion criteria

Inclusion criteria: All patients and carriers included in the previous study aged 18 years or older

Exclusion criteria

Exclusion criteria: none

Design outcomes

Primary

Measure	Time frame
Presence of VBD related clinical symptoms	—

Secondary

Measure	Time frame
* Bone turnover markers, sclerostin values in serum * Bone mineral density (BMD)	—

Countries

Netherlands

Outcome results