Skip to content

Ageing with Cerebral Palsy- a study into citizenship

Ageing with Cerebral Palsy- a study into citizenship - Ageing with Cerebral Palsy and citizenship

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
NL-OMON
Registry ID
NL-OMON49806
Enrollment
20
Registered
2020-08-24
Start date
2020-09-15
Completion date
Unknown
Last updated
2025-08-18

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

 Infantile encephalopathy  Spastic paralysis

Interventions

None listed

Sponsors

Hogeschool Rotterdam, Kenniscentrum Zorginnovaties
Lead Sponsor

Eligibility

Age
18 Years to 99 Years

Inclusion criteria

Inclusion criteria: * Documented CP diagnosis; * Age 40 years or older; * Good comprehension of Dutch language.

Exclusion criteria

Exclusion criteria: * Severe learning difficulties (an (estimated) IQ lower than 70) as documented in the patient record; * Severe comorbidity (including depression, severe somatic disorders).

Design outcomes

Primary

MeasureTime frame
Before the interviews take place, participants are asked to express their opinion and / or experience of citizenship using the Photovoice method. The participants take pictures of their own lives in which they show what citizenship means to them and what it could or should mean. In the life-course interview, participants talk about the photos they have taken. Analyses will reveal themes of what is important considering ageing with CP and citizenship.

Countries

Netherlands

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)