The implications of discussing uncertainty in cancer genetic counseling about multigene panel testing for (analogue) patients* cognitive and affective outcomes.

The implications of discussing uncertainty in cancer genetic counseling about multigene panel testing for (analogue) patients* cognitive and affective outcomes. - Communication of and responses to uncertainty

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON49684

Enrollment

222

Registered

2020-02-18

Start date

2019-07-04

Completion date

Unknown

Last updated

2024-02-28

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Hereditary cancer

Interventions

Genetic counseling

Hereditary cancer

Uncertainty

Eligibility

Age

18 Years to 64 Years

Inclusion criteria

Inclusion criteria: Adults who have visited one of the participating genetic centers and having received genetic counseling for hereditary cancer.

Exclusion criteria

Exclusion criteria: Children, and adults having received genetic counseling for possible hereditary predispostition for other diseases than cancer. Being either cancer patient themselves or a relative of a cancer patient.

Design outcomes

Primary

Measure	Time frame
Degree of uncertainty	—

Secondary

Measure	Time frame
Degree of anxiety, degree of control, satisfaction, hope, trust, trust in understanding, information recall and decision-making.	—

Countries

The Netherlands

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)