oncologische aandoeningen cancer malignancies
Conditions
Interventions
Sponsors
Eligibility
Inclusion criteria
Inclusion criteria: Inclusion criteria of the RCT: - Incurable cancer; no curative treatment options; - A prognosis of at least 3 months; - Awareness of the incurability of the cancer. Additional criteria of the PAMQOL-study: For the qualitative study additional inclusion criteria are that a patient must have completed the RCT and gave his/her permission on the informed consent form of the RCT that he/she could be approached for the follow-up study.
Exclusion criteria
Exclusion criteria: - Not having access to the internet and not having an e-mail address; - Severe cognitive impairments; - Psychotic behaviour (delusions and hallucinations); - Poor understanding of the Dutch language (and thereby not able to complete a Dutch questionnaire); - Younger than 18 years; - Patients too ill to participate; - Not willing to participate; - No informed consent; - Patients who participated in the randomized controlled trial of the ICT4CANCER project (as a cancer survivor), but who are now diagnosed with incurable cancer; - E-mail address of patient is already registered in Oncokompas (this means that this patient is familiar with using Oncokompas); - Patients of which their physician/nurse thinks participation in another study will be too much of a burden.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The primary outcome measue is patient activation (PAM). | — |
Secondary
| Measure | Time frame |
|---|---|
| Secondary outcomes are general self-efficacy (GSE), quality of life (EORTC QLQ-C15-PAL). To investigate the cost-utility we will use different cost questionnaires (iMCQ and iPCQ) and the EQ-5D. | — |
Countries
Netherlands