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Nursing support of family caregivers in end of life care at home

Nursing support of family caregivers in end of life care at home - InCaSu@home

Status
Active, not recruiting
Phases
Unknown
Study type
Interventional
Source
NL-OMON
Registry ID
NL-OMON48129
Enrollment
92
Registered
2019-04-19
Start date
2019-06-14
Completion date
Unknown
Last updated
2024-08-19

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

overbelasting mantelzorger burden overburden

Interventions

Intervention: The nurses (of the intervention group) will use the Caregiver Support Needs Assessment (CSNAT)-tool. It is a valid tool for the direct measurement of family caregivers' support needs i
http://csnat.org) Training: Therefore nurses will be trained in the use of the CSNAT. The training program will consist of an e-learning program, two group sessions, and three intervision sessions

Sponsors

Erasmus MC, Universitair Medisch Centrum Rotterdam
Lead Sponsor

Eligibility

Age
18 Years to 99 Years

Inclusion criteria

Inclusion criteria: Family caregivers: - family caregivers of terminally ill patients (with 3-6 months life expentancy). - written informed consent to participate

Exclusion criteria

Exclusion criteria: Family caregivers: - family caregivers of patients with less than 2 weeks anticipated life expectancy. - family caregivers of patients with severe dementia. - enable to complete the Dutch questionnaire

Design outcomes

Primary

MeasureTime frame
Our primary outcome: - Caregiver burden as measured by the Selfrated Burden Scale (SRB), 1 item. (van Exel, et al., 2004)

Secondary

MeasureTime frame
The secondary outcomes: 1) Caregiver burden as measured by the Caregiver Reaction Assessment (CRA), 24 items (Given et al., 1992, Nijboer et al., 1999) 2) Caregivers* preparedness as measured by the Preparedness for Caregiving Scale (PCS), 8 items. (Archbold et al., 1990, Hudson & Hayman-White, 2006) 3) The incidence of acute hospital admissions of the patient.

Countries

Netherlands

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)