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Rare Bleeding disorders in the Netherlands

Rare Bleeding disorders in the Netherlands - RBiN

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
NL-OMON
Registry ID
NL-OMON47773
Enrollment
246
Registered
2018-01-17
Start date
2017-11-08
Completion date
Unknown
Last updated
2024-02-28

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

a2-antiplasmin or PAI-1. Rare bleeding disorders deficiency of factor I II V V&VIII VII X XI XIII

Interventions

Blood Coagulation Disorders
Genotype
Quality of life

Sponsors

Radboud Universitair Medisch Centrum
Lead Sponsor

Eligibility

Age
2 Years to 64 Years

Inclusion criteria

Inclusion criteria: Rare bleeding disorder Age 1-99

Exclusion criteria

Exclusion criteria: No informed consent Residency outside of the Netherlands

Design outcomes

Primary

MeasureTime frame
Description of the clinical phenotype, laboratory phenotype, genotype and quality of life of patients with rare bleeding disorders

Countries

The Netherlands

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)