alle chronische ziektes nvt
Conditions
Interventions
All Op Koers Online courses will be given in a secured chat environment and a
secured chat box, in which participants log in every week at the same time. Op
Koers Online for adolescents consists of
Sponsors
Academisch Medisch Centrum
Eligibility
Age
12 Years to 99 Years
Inclusion criteria
Inclusion criteria: - Adolescents with a chronic illness, - Age: between 12 - 18 years old - being able to read and typ in Dutch;- Parents of a child/adolescent with a chronic illness - Age of the child between 0 - 18 years old - being able to read and typ in Dutch
Exclusion criteria
Exclusion criteria: 1. Insufficient knowledge of the Dutch language. Adolescents and parents need to understand the content of the intervention and the essence of the questionnaires. 2. Children with intellectual disabilities.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Parents and adolescents are asked to fill in a questionnaire at four different times: before the intervention (baseline), after the intervention (T1), six months after the start of the intervention (T2) and twelve months after the start of the intervention (T3). The questionnaires will be filled in in the secured website of Op Koers Online. Participants receive an automatic email to fill in the questionnaires. They use the same login code to fill in the questionnaire as to participate in the course. The questionnaires that are used, are all related to the intervention or are focused on psycho-emotional outcomes. In previous studies, most questionnaires have shown to be effective in identifying intervention effects of Op Koers (Scholten et al., 2013). To measure the amount and disposition of psychosocial problems of adolescents with a chronic illness and parents, and to measure effectiveness, several questionnaire will be given: Primary study parameters: Adolescents: - Child Behavior Checklist (Achenbach, 1991) Parents: Hospital Anxiety and Depression Scale (HADS) (Spinhoven et al., 1997) | — |
Secondary
| Measure | Time frame |
|---|---|
| Adolescents: * Youth Self-report (YSR) standardised and validated questionnaire that gathers information about emotional and behavioural problems of the adolescent. (Verhulst, Van de Ende, & Koot, 1997). * Perceived Competence Scale for Adolescents (CBSA) standardised and validated questionnaire that gathers information of the adolescent about self-worth. (Treffers et al., 2002). * Pediatric Quality of Life Inventory * self report (PedsQL) standardised and validated questionnaire that gathers information about the adolescents perceived quality of life. (Engelen, Haentjens, Detmar, Koopman, & Grootenhuis, 2009). * Op Koers questionnaire (Last et al., 2007) intervention related outcome measure. * Evaluation questionnaire to assess the intervention content, design, course leaders and satisfaction with the course. Ouders: * Pediatric Quality of Life Inventory * Family Impact Module (PedsQL-FIM) standardised and validated questionnaire that gathers information about the parent*s perceived quality of life and the impact of the chronic illness on family life (Medrano, Berlin, & Davies, 2013). * Distress Thermometer for Parents, standardised and validated questionnaire that maps the degree of mental pressure, stress and wellbeing of the parent. (Haverman et al., 2013). * Inventory Social Involvement, standardised and validated questionnaire that gathers information about the parental perceived social involvement from his or her surrounding (Dam-Baggen, 1989). * Illness Cognition Questionnaire for Parents, standardised and validated questionnaire that measures to what extent the concepts helplessness, acceptation and illness benefits are present as illness cognitions in a parent (Evers et al., 2001). * Op Koers questionnaire: intervention related outcome measure. * Evaluation questionnaire to assess the intervention content, design, course leaders and satisfaction with the course. | — |
Countries
Netherlands
Outcome results
None listed