Het betreft immuun-dysregulatiestoornissen zoals JIA, JDM, CVID, MCTD, SLE, Syndroom van Sjögren etc Immune dysregulation disorders / (auto)immune diseases
Conditions
Interventions
Participants will receive web-based CBT for fatigue in addition to usual care
for their primary disease. The CBT treatment consists of 20 interactive
treatment modules, over a period of six months.
Sponsors
Universitair Medisch Centrum Utrecht
Eligibility
Age
12 Years to 99 Years
Inclusion criteria
Inclusion criteria: - Age of 11,5 - 18 years old - Able to speak, read, and write Dutch - Diagnosed with an immune dysregulation disorder (i.g. JIA, JDM, CVID, MCTD, SLE etc) - Being severely fatigued for at least 3 months (CIS fatigue * 40) - Physical functioning subscale (Child Health Questionnaire) score * 85 and/or school absence > 10% - At least 3 months on stable medication (type and dosage) - Diagnosed with unexplained fatigue by the general paediatrician
Exclusion criteria
Exclusion criteria: - Suspicion of active disease requiring adaptation of treatment (at the time of inclusion) or a possible visit to the paediatric rheumatologist (during treatment) - Cognitive impairment, estimated IQ
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Fatigue severity, measured with the fatigue severity scale of the CIS-20 questionnaire. | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. School presence, expressed in attended hours / obliged hours * 100% last two weeks 2. Physical functioning, measured with the physical functioning scale of the CHQ 3. Pain, measured with the with the VAS scores for pain (with scores ranging from 0-100 mm) | — |
Countries
Netherlands
Outcome results
None listed