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The CAA-HERITAGE study: Hereditary Cerebral Amyloid Angiopathy-Dutch type; Investigating Genealogy and Disease Course

The CAA-HERITAGE study: Hereditary Cerebral Amyloid Angiopathy-Dutch type; Investigating Genealogy and Disease Course - The CAA-HERITAGE study

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
NL-OMON
Registry ID
NL-OMON47371
Enrollment
400
Registered
2015-03-25
Start date
2015-11-10
Completion date
Unknown
Last updated
2025-09-01

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

familial amyloid angiopathy HCHWA-D

Interventions

None listed

Sponsors

Leids Universitair Medisch Centrum
Lead Sponsor

Eligibility

Age
18 Years to 99 Years

Inclusion criteria

Inclusion criteria: Age >=18 years Diagnosed with: HCHWA-D with proven mutation; and/or symptoms suggestive of the mutation. Ability and willingness to provide written informed consent.

Exclusion criteria

Exclusion criteria: Age

Design outcomes

Primary

MeasureTime frame
Number of HCHWA-D mutation carriers, their disease expression and other genetic, environmental and vascular risk factors that could influence their disease course.

Countries

Netherlands

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)