DMD Duchenne Muscular Dystroph
Conditions
Interventions
a 3 month martial arts based training program for DMD patients.
Sponsors
Radboud Universitair Medisch Centrum
Eligibility
Age
2 Years to 17 Years
Inclusion criteria
Inclusion criteria: - DNA established diagnosis of DMD - Able to touch the top of the head with both hands
Exclusion criteria
Exclusion criteria: - Participants younger than 4 years - Other disabling diseases influencing physical or psychosocial function - Not being able to follow instructions or moderate to severe cognitive limitations (IQ
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The primary outcome of our study is the feasibility of the exercise program, which we consider achieved as the mean adherence rate > 70% of the trainings sessions and no injuries or adverse effects occur. | — |
Secondary
| Measure | Time frame |
|---|---|
| Secondary outcome measures are: self-perception measured with the CBSK, strength measured with the hand-held dynamometer, passive range of motion measured with a goniometer, psychosocial questionnaires, quality of life questionnaire and functional scales. | — |
Countries
Netherlands
Outcome results
None listed