Parkinsonism Parkinson's Disease
Conditions
Interventions
Nurse practitioner in the intervention group will get a training in ACP and
care coordination.
Sponsors
Radboud Universitair Medisch Centrum
Eligibility
Age
18 Years to 99 Years
Inclusion criteria
Inclusion criteria: Patients with a diagnosis of idiopathic Parkinson's disease: - that have sufficient skills to answer questions or write information - that were 18 years of older at the time of diagnosis; - at advanced stage of PD: Hoehn &Yahr stadium III-V or a score on *Schwab en England 60% or less
Exclusion criteria
Exclusion criteria: 1. Patients with a type of atypical parkinsonism caused by medication (e.g. neuroleptics), a metabolic disorder (e.g. Wilson*s disease), encephalitis or a neurodegenerative disorder (e.g. MSA, PSP). 2. Patients with idiopathic PD that live in a nursing home or another type of residential care facility (because the PDNS is not operational there).
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The primary outcome is whether or not ACP decisions are documented in the medical file. Secondary outcomes include quality of life, caregiver burden, service use, treatment satisfaction and general functioning among patients. | — |
Secondary
| Measure | Time frame |
|---|---|
| Quality of life Quality of care Disease symptoms Anxiety and depression place of death crisis situation | — |
Countries
Netherlands
Outcome results
None listed