Questionnaire and interview study with parents of children with congenital abnormalities

Questionnaire and interview study with parents of children with congenital abnormalities - MMW Amalia

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON45842

Enrollment

Registered

2018-11-07

Start date

2018-11-24

Completion date

Unknown

Last updated

2024-04-15

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

aangeboren afwijkingen op het gebied van neonatologie, nefrologie, metabole ziekten, neurologie, endocrine ziekten, en urologie congenital disorders

Interventions

None listed

Eligibility

Age

18 Years to 99 Years

Inclusion criteria

Inclusion criteria: - Parents of children with a congenital defect (nephrology, metabolic diseases, neurology, endocrine diseases, and urology) - Diagnosis in the past year - Good knowledge of the Dutch language

Exclusion criteria

Exclusion criteria: - Parents of children who are being treated palliative

Design outcomes

Primary

Measure	Time frame
Outcomes LTO Outcomes semi-structured interviews	—

Countries

Netherlands

Outcome results