Systemic sclerosis: CT-derived evaluation of interstitial lung disease and pulmonary vasculopathy for assessment of progression of disease. Research protocol for extended volume HRCT-thorax in patients with systemic sclerosis participating in a 2 *day multidisciplinary team care program of the department of Rheumatology and Pulmonology

Systemic sclerosis: CT-derived evaluation of interstitial lung disease and pulmonary vasculopathy for assessment of progression of disease. Research protocol for extended volume HRCT-thorax in patients with systemic sclerosis participating in a 2 *day multidisciplinary team care program of the department of Rheumatology and Pulmonology - HRCT thorax in patients with systemic sclerosis and fibrotic lung diseases

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON44504

Enrollment

Registered

2015-02-04

Start date

2015-03-09

Completion date

Unknown

Last updated

2024-04-23

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

long fibrosis

Interventions

None listed

Eligibility

Age

18 Years to 99 Years

Inclusion criteria

Inclusion criteria: 1. Diagnosis of systemic sclerosis according to ACR/EULAR 2013 criteria or suspected / confirmed fibrotic lung disease 2. Age * 18 years 3. First consultation at Zorgpad Sclerodermie LUMC or the dedicated ILD outpatient clinic and high risk profile* and/or low DLCO/ and/or low FVC which indicates a standard HRCT scan 4. Life expectancy > 6 months 5. Able and willing to undergo annual follow-up for 3 consecutive years 6. Written informed consent

Exclusion criteria

Exclusion criteria: 1. Inability to perform pulmonary function testing

Design outcomes

Primary

Measure	Time frame
zie nederlandse samenvatting	—

Secondary

Measure	Time frame
zie nederlandse samenvatting	—

Countries

Netherlands

Outcome results