Multiple Hereditary Exostosis and its daily hassles

Multiple Hereditary Exostosis and its daily hassles - MHE and its daily hassles

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON44220

Enrollment

150

Registered

2017-11-06

Start date

2019-06-17

Completion date

Unknown

Last updated

2024-04-15

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

benign bonetumour Multiple Osteochondromas

Interventions

None listed

Eligibility

Age

2 Years to 17 Years

Inclusion criteria

Inclusion criteria: Individuals with multiple hereditary exostosis (MHE). Individuals with MHE between 4 untill 17 years old.

Exclusion criteria

Exclusion criteria: Individuals under the age of 4 years or older than 17 years. Individuals who do not speak Dutch

Design outcomes

Primary

Measure	Time frame
Quality of live scores, painscores, fatiguescores, activitylevels, mental well-being scores.	—

Secondary

Measure	Time frame
Factors that are associated with the primary study parameters, such as: age, seks, age of first surgery, amount of surgeries, education level, marital status, employment status.	—

Countries

Netherlands

Outcome results