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Palliative care for people with addiction and multiple problems: an explorative study of problems, needs, improvements and good examples experienced by healthcare professionals, patients and proxies.

Palliative care for people with addiction and multiple problems: an explorative study of problems, needs, improvements and good examples experienced by healthcare professionals, patients and proxies. - PAL V

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
NL-OMON
Registry ID
NL-OMON44194
Enrollment
15
Registered
2017-08-30
Start date
2017-09-29
Completion date
Unknown
Last updated
2024-02-28

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

elke palliatieve somatische aandoening of palliatieve fysieke gesteldheid addiction palliative phase

Interventions

palliative care
qualitative research
substance abuse
vulnerability

Sponsors

Radboud Universitair Medisch Centrum
Lead Sponsor

Eligibility

Age
18 Years to 64 Years

Inclusion criteria

Inclusion criteria: Within this research project, inclusion is possible if the patient: 1) is dependent on substances like, alcohol, cannabis, cocaine, opioids (including heroin), sedatives (often benzodiazepines) and/or GHB; 2) is diagnosed with the DSM-V classification severe *substance use disorder* or otherwise assessed as such by a competent professional caregiver; 3) is suffering from multiple problems (not obligatory, but often true for this patient group) like a) co-morbid psychiatric problems; b) being homeless or having a history of homelessness or; c) vulnerable or little social relations; 4) is 18 years or older; 5) has mastered Dutch in such way that it allows him/her to participate in an interview; 6) is cognitively capable enough to answer interview question (due to their addiction, many patients are cognitively damaged); 7) understands what the study comprehends for him/her.;Furthermore, the central professional caregiver: 8) has to answer *no* to the following question with *no*: *would it surprise you if this patient would die within five years?*. The original surprise question is extended to increase inclusion; 9) has explicitly communicated with the patient about the fact that (s)he is not going to be cured and now reached a palliative phase: this is either caused by somatic disease or as a consequence of severe, increasing physical deterioration as a result of addictive behavior.

Exclusion criteria

Exclusion criteria: People with only non-physical addiction are excluded: addiction that is only mental or is behavioral only, such as, gambling, porn/sex or gaming. These addictions do not directly result in physical problems. Furthermore, people that do suffer from addiction in tobacco/nicotine only, are excluded because this addiction does not necessarily impact life domains outside the physical. Finally, people that are severely cognitively impaired will be excluded.

Design outcomes

Primary

MeasureTime frame
N.A.

Secondary

MeasureTime frame
N.A.

Countries

The Netherlands

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)