Coping strategies in adults with a diagnosis of refractory epilepsy: Development, antecedents, and consequences.

Coping strategies in adults with a diagnosis of refractory epilepsy: Development, antecedents, and consequences. - Coping in adults with refractory epilepsy.

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON43395

Enrollment

300

Registered

2016-04-18

Start date

2016-09-29

Completion date

Unknown

Last updated

2024-04-23

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

convulsion epilepsy seizures

Interventions

None listed

Eligibility

Age

18 Years to 99 Years

Inclusion criteria

Inclusion criteria: Patients with a diagnosis of refractory epilepsy in the age range of 18-40 years with a sufficient knowledge of the Dutch language, no other chronic illness, and an estimated IQ above 70.

Exclusion criteria

Exclusion criteria: Exclusion criteria include mental retardation or cognitive delays which makes patients incapable of filling out the questionnaires, presence of another chronic illness, insufficient knowledge of the Dutch language, no available contact information, no written consent.

Design outcomes

Primary

Measure	Time frame
The primary study parameter of the study is coping strategies and hypothesized antecedents (i.e., executive functioning, illness identity and perceptions, and personality) and consequences (i.e., quality of life and seizure frequency/severity).	—

Secondary

Measure	Time frame
Secondary study parameters of the study are demographic and clinical variables: gender, age (date of birth), level of education, employment status, ethnic background, marital status, age of onset of the epilepsy, type of epilepsy, medication use, epilepsy surgery (yes/no), psychogenic non-epileptic seizures (PNES) (yes/no).	—

Countries

Netherlands

Outcome results