neuropsychiatrische symptomen neuropsychiatric symptoms in early dementia
Conditions
Interventions
The Online Life Story Book is an e-health application that allows to place
personal memories on a dynamic timeline. The timeline is easily marked with
historical years. Memories like life events, an
Sponsors
Universiteit Twente
Eligibility
Age
18 Years to 99 Years
Inclusion criteria
Inclusion criteria: Inclusion criteria: 1.Mild Cognitive Impairment or early dementia (Clinical Dementia Rating 0.5 or 1; Morris, 1993); 2.Living at home and receiving informal care; 3.Being mentally competent to provide informed consent
Exclusion criteria
Exclusion criteria: Exclusion criterion is past psychotrauma (module posttraumatic stress disorder assessed with the Mini International Neuropsychiatric Interview)
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The main study parameters are Neuropsychiatric symptoms (NPS) at follow-up (i.e., six months after the first measurement). NPS are measured with the NeuroPsychiatric Inventory (NPI). | — |
Secondary
| Measure | Time frame |
|---|---|
| 1) The burden and quality of life of the informal caregiver are assessed with the EDIZ, the emotional burden scale of the NPI, and the CarerQol. 2) The health economic evaluation will be carried out based on the reported care consumption and quality of life (EQ5D) of the person with dementia. 3) The longer term effect on (time to) nursing home admittance will be carried out in month 18 together with the general practitioner). 4) The experiences with the intervention will be assessed with interviews with 28 stakeholders (persons with dementia, informal caregivers, volunteers, and professionals) and the use and complexity of the life story book will be assessed through a content analysis of 20 life story books. | — |
Countries
Netherlands
Outcome results
None listed