geen aandoeningen, zelfvertrouwen en psychische belasting/stress bij familieleden van mensen met dementie in een vroeg stadium (inclusief prodromale dementie
Conditions
Interventions
Participants will be asked to participate in an online self-management program
called *Partner in Balans* over an (+/-) 8-week period. In addition, they will
meet twice with a personal coach to asse
Sponsors
Medisch Universitair Ziekenhuis Maastricht
Eligibility
Age
18 Years to 99 Years
Inclusion criteria
Inclusion criteria: - Family caregiver of a patient diagnosed with (very) early-stage dementia including prodromal dementia (MCI due to AD, based on the etiological diagnosis expected to convert to dementia). - Caregiver is >18 years. - Caregiver has access to the Internet at home and already masters basic skills in the use of computers. - Written informed consent is obtained.
Exclusion criteria
Exclusion criteria: - Caregivers who have insufficient cognitive abilities to engage in the online self-management program (based on clinical judgment of knowledgeable practitioner, based on his/her experience with the target group). - Caregivers who are overburdened or have severe health problems (based on clinical judgment of knowledgeable practitioner, based on his/her experience with the target group). - Caregivers who*s current or near-future situation demands acute, intensive counselling (based on clinical judgment of knowledgeable practitioner, based on his/her experience with the target group). - Caregivers of people with dementia caused by human immunodeficiency virus (HIV), acquired brain impairment, Down syndrome, chorea of Huntington or alcohol abuse.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The current study aims to evaluate the effectiveness of an individual online self-management program called *Partner in Balans* in increasing feelings of self-confidence and preventing depressive complaints in family caregivers of patients with (very) early-stage dementia including prodromal dementia (MCI due to AD according to the clinical criteria established by McKhann (McKhann, Drachman et al. 1984; McKhann 2011). The null-hypothesis states that there is no difference before and after participating in the self-management intervention *Partner in Balans* and that there is no difference between the intervention group and the waitlist-control group in participant*s subjective well-being. The alternative hypothesis states that there is a difference within and between groups after participating in the self-management program. We expect the alternative hypothesis to be true, with an improved subjective self-confidence (increased self-efficacy) and a decreased or constant level of depressive complaints after participation in the self-management intervention. | — |
Secondary
| Measure | Time frame |
|---|---|
| Our additional aim is to assess the feasibility of the online self-management program *Partner in Balans* for the people receiving the intervention as well as the people performing the intervention (the personal coaches) through a process evaluation. Moreover, the costs of the intervention will be evaluated by assessing the health care utilisation and associated costs in both groups and the additional costs of 'Partner in Balans'. | — |
Countries
Netherlands
Outcome results
None listed