Huntington's disease
Conditions
Interventions
Intervention
While participating in the study, all participants (in both the music therapy
group and the control group) continue to receive treatment as usual.
Patients will participate in group in
Sponsors
Leids Universitair Medisch Centrum
Eligibility
Age
18 Years to 99 Years
Inclusion criteria
Inclusion criteria: - Age older than 18 years - Clinically and genetically confirmed Huntington*s Disease (CAG * 36 repeats) - Total Functional Capacity (TFC) of
Exclusion criteria
Exclusion criteria: - Patients who suffer from other neurological disorders - Patients with poor comprehension of the Dutch language.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Outcome measures Behaviour Observation Scale Huntington (BOSH) contains 32 items in 3 subscales: 1) activities of daily living (ADL), 2) social-cognitive functioning, and 3) mental rigidity and aggression. Expressive- and communicative skills are also measured. The Problem Behaviours Assesment-short version is a 5-point rating scale, using the scores 0 (absent) to 4 (severe). Besides that, there is a subscale for severity and one for frequency. The PBA-s is a 10-item semi-structured interview and assesses behavioural problems in the 4 weeks prior to the interview. | — |
Secondary
| Measure | Time frame |
|---|---|
| n.a. | — |
Countries
Netherlands
Outcome results
None listed