The development of the Dutch ICF Activity Inventory for children and adolescents with a visual impairment (D-AI KIDS)

The development of the Dutch ICF Activity Inventory for children and adolescents with a visual impairment (D-AI KIDS) - The D-AI KIDS

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON41493

Enrollment

1495

Registered

2013-03-19

Start date

2014-01-08

Completion date

Unknown

Last updated

2024-04-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

vision loss visual impairment

Interventions

None listed

Eligibility

Age

2 Years to 99 Years

Inclusion criteria

Inclusion criteria: - Visual disability according to Dutch guidelines (van Rens et. al., 2011) - Aged between 0 and 18 years old for D-AI KIDS - aged between 18-25 years old for D-AI YA - Informed consent is given - Sufficient understanding of the Dutch language (both parents and children when age-appropriate) - Children with (severe) cognitive impairment will be included, however data will only be obtained from the parents.

Exclusion criteria

Exclusion criteria: - Parents with severe cognitive impairment - Parents with insufficient knowledge and understanding of the Dutch language

Design outcomes

Primary

Measure	Time frame
Development of the D-AI KIDS and the D-AI YA and assessment of the psychometric properties by analyzing data obtained from the target population and their parents. Psychometric properties such as content validity, construct validity, reliability and feasibility of the instrument will be investigated, and are important endpoints in this study.	—

Secondary

Measure	Time frame
Secundary study parameters: not applicable Other study parameters: - Disabled children*s participation: Child and adolescent scale of participation (CASP). - Data on the feasibility and psychometric properties of the Dutch translation of the CASP. - Health related quality-of-life in children aged 8-18 years: KIDSCREEN - 52 - Sociodemographic data will be collected, i.e. age, gender, diagnosis, age when diagnosed. - Process evaluation: in order to optimize the D-AI KIDS and the D-AI YA assessors administering the instrument and participating parents, children and adolescents will be asked to fill-out an evaluation form.	—

Measure

Time frame

Secundary study parameters: not applicable Other study parameters: - Disabled children*s participation: Child and adolescent scale of participation (CASP). - Data on the feasibility and psychometric properties of the Dutch translation of the CASP. - Health related quality-of-life in children aged 8-18 years: KIDSCREEN - 52 - Sociodemographic data will be collected, i.e. age, gender, diagnosis, age when diagnosed. - Process evaluation: in order to optimize the D-AI KIDS and the D-AI YA assessors administering the instrument and participating parents, children and adolescents will be asked to fill-out an evaluation form.

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Countries

Netherlands

Outcome results