Study on psychological effects and moral implications of a continued pregnancy of a child identified as carrier of Huntington's disease

Study on psychological effects and moral implications of a continued pregnancy of a child identified as carrier of Huntington's disease - implications of continued pregnancy with Huntington's disease

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON41170

Enrollment

Registered

2014-04-25

Start date

2015-04-01

Completion date

Unknown

Last updated

2024-04-23

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

hereditary brain disorder neurogenetic disorder

Interventions

None listed

Eligibility

Age

18 Years to 99 Years

Inclusion criteria

Inclusion criteria: couples who have continued a pregnancy with identified Huntington's disease

Exclusion criteria

Exclusion criteria: Couples who have objected against using their data Incompetent, e.g. as a result of symptoms of Huntington's disease, the healthy partner will be asked to participate in the interview

Design outcomes

Primary

Measure	Time frame
Zijn er individuele psychologische en morele conflicten bij ouders als gevolg van de beslissing de zwangerschap niet af te laten breken? 2. Zijn er psychologische en morele conflicten in de relatie gerelateerd aan de beslissing de zwangerschap niet af te breken? 3. Hoe handelen ouders jegens hun kinderen wat betreft het informeren over hun dragerschap voor HD?	—

Secondary

Measure	Time frame
NOT APPROPRIATE	—

Countries

Netherlands

Outcome results