Daily activities, participation, quality of life, health care usage and satisfaction in patients with Obstetric Brachial Plexus Injuries

Daily activities, participation, quality of life, health care usage and satisfaction in patients with Obstetric Brachial Plexus Injuries - ZAP-Plexus

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON40968

Enrollment

1250

Registered

2014-05-12

Start date

2014-09-01

Completion date

Unknown

Last updated

2024-04-23

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Obstetrisch Plexus Brachialis Letsel Erb's paresis Obstetric Brachial Plexus Injuries

Interventions

None listed

Eligibility

Age

2 Years to 99 Years

Inclusion criteria

Inclusion criteria: Obstetric Brachial Plexus Injury

Exclusion criteria

Exclusion criteria: Unable to read and write in Dutch

Design outcomes

Primary

Measure	Time frame
Socio-demographic status (age, gender, dexterity, education, work etc.), relevant disease specific questions (not present in existing questionnaires) regarding functional abilities, participation, the use of assistive devices, cosmetics, impact on familiy, health care utilization and satisfaction with care (OBPI GAP-C), Upper extremity functioning (ABILHAND-Kids, HUH, PODCI-NL, DASH-DLV and MHOQ-DLV), Quality of Life (TAPQOL, TACQOL, TAAQOL, DISABKIDS, SF-36), Physical Activity (SQUASH, AQUA), Participation (IPA, USER-P) and Transition from childhood into adulthood (Rotterdam Transition Profile).	—

Measure

Time frame

Socio-demographic status (age, gender, dexterity, education, work etc.), relevant disease specific questions (not present in existing questionnaires) regarding functional abilities, participation, the use of assistive devices, cosmetics, impact on familiy, health care utilization and satisfaction with care (OBPI GAP-C), Upper extremity functioning (ABILHAND-Kids, HUH, PODCI-NL, DASH-DLV and MHOQ-DLV), Quality of Life (TAPQOL, TACQOL, TAAQOL, DISABKIDS, SF-36), Physical Activity (SQUASH, AQUA), Participation (IPA, USER-P) and Transition from childhood into adulthood (Rotterdam Transition Profile).

—

Secondary

Measure	Time frame
N.a.	—

Countries

Netherlands

Outcome results