Parental experiences and perspectives of end-of-life decision-making in allogeneic paediatric stem cell transplant

Parental experiences and perspectives of end-of-life decision-making in allogeneic paediatric stem cell transplant - PERSPECTIVES

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON40690

Enrollment

Registered

2014-03-24

Start date

2014-05-14

Completion date

Unknown

Last updated

2024-04-23

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

ouderlijke besluitvorming rondom het levenseinde post stamceltransplantatie bij kinderen. parental decision-making

Interventions

None listed

Eligibility

Age

18 Years to 99 Years

Inclusion criteria

Inclusion criteria: Parents with experience in End-Of-Life decision-making. Parents of deceased children after paediatric allogeneic Stemceltransplant. Parents of children who died within a year after a Stemceltransplant. Parent whose child passed away between two years and six weeks ago.

Exclusion criteria

Exclusion criteria: The parent is unable to speak and read Dutch The parent lives abroad.

Design outcomes

Primary

Measure	Time frame
Description of parents* experiences and about EOL decision-making after allogeneic paediatric SCT.	—

Secondary

Measure	Time frame
• Identification of the way parents get insight in their childs condition and treatment options during the EOL process; • Identification of EOL decisions from the parents perspectives; • A description of parents* considerations concerning the EOL decisions they felt confronted with; • Identification of the factors which influence the parents* decision-making in the EOL process; • Identification of supportive strategies in EOL decision-making from the parents* perspectives.	—

Measure

Time frame

• Identification of the way parents get insight in their child*s condition and treatment options during the EOL process; • Identification of EOL decisions from the parents* perspectives; • A description of parents* considerations concerning the EOL decisions they felt confronted with; • Identification of the factors which influence the parents* decision-making in the EOL process; • Identification of supportive strategies in EOL decision-making from the parents* perspectives.

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Countries

Netherlands

Outcome results