Ziekte van Addison, primaire bijnier insufficientie pituitary adenoma pituitary tumor primary adrenal insufficiency
Conditions
Interventions
The proposed psychosocial intervention will be based on the *Patient Education
Program* (PEP)
a behavioural intervention addressing psychosocial topics.
Previous research demonstrated that this program beneficially affect QoL in
patients with Parkinson*s disease and their caregivers. This st
during the last session, the intervention will be evaluated. The
partners/caregivers of the patients are also involved in the PEP. The
participating caregivers in our study will follow the same prog
Sponsors
Leids Universitair Medisch Centrum
Eligibility
Age
18 Years to 99 Years
Inclusion criteria
Inclusion criteria: • Patients during follow up for pituitary tumors or Addison's disease at the outpatient clinic of the Leiden University Medical Center or the Radboud University Medical Center • Patients should be in a stable medical situation.
Exclusion criteria
Exclusion criteria: • Age 75yr • Currently receiving psychological/psychiatric treatment • Presence of psychiatric illness
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Dependent variables: • Questionnaires on psychological and social aspects (QoL, illness perceptions, coping strategies, self-efficacy, personality traits) • Questionnaires about general well-being • Questionnaire about daily functioning: employment status, days absent at work due to their illness and how often they seek medical care. | — |
Secondary
| Measure | Time frame |
|---|---|
| Explorative data: • Information focus groups • Data needs assessment • Clinical data of previous treatment (including surgery, radiotherapy), • Clinical data on current status (endocrine status, substitution treatment, and concomitant disease(s) and treatment). • Data somatic screening (weight, length, blood pressure, heartbeat, hip/waist- ratio) | — |
Countries
Netherlands
Outcome results
None listed